Events

Explore our events and webinars

Our events bring together people with ME, researchers, clinicians and advocates to share knowledge, spark collaboration and push forward the science of ME. On this page, you’ll find recordings of our webinars and research summits, offering insights into the latest developments, expert discussions and the lived experience of ME.

Whether you’re new to ME research or deeply involved, we invite you to watch, learn and be part of the conversation.

Webinar – June 2025

📹 Watch presentations from Audrey Ryback, Research Fellow at the University of Edinburgh (funded by Action for ME), and PrecisionLife, our Partners in the LOCOME research project.

❓💬 Followed by a Q&A with scientists and Public and Patient Involvement representatives.

Webinar – Oct 2024

Stay up-to-date with:

  • Sonya Chowdhury (Action for ME) on the Centre’s main activities since its launch, including grant applications and new partnerships.  
  • Prof. Chris Ponting (University of Edinburgh) about a recent Medical Research Council (MRC) grant application for a ME genetic research partnership, and his vision for what the Genetics Centre of Excellence hopes to achieve.
  • A presentation by Prof. Simon Carding (Norwich Medical School) on the research and partnerships happening at Norwich, and his ambitions for ME research.
  • A presentation by Audrey Ryback (Research Fellow, affiliated with Genetics Centre of Excellence) about her research on biomarkers for ME. Since October 2023, Audrey has been working under Prof. Chris Ponting as part of the first Clare Francis Postdoctoral Fellowship awarded by Action for ME.
  • A 30-minute Q&A session, where attendees can ask questions to the panellists and other Genetics Centre of Excellence partners (Hayley Arron – PhD Candidate, Stellenbosch University, Kelly McLellan (lived experience representative), and Helen Baxter (lived experience representative) about the future direction of ME genetic research.

Research Summit – 2022

You can access the full playlist of speakers from the summit here.

Learn about the state of ME research with:

  • Prof. Chris Ponting (University of Edinburgh) on research priorities in the field of ME, the key questions to be asking, and the importance of collaboration.
  • Sian Leary on Patient and Public Involvement in DecodeME and PPI best practise within ME research.
  • Prof. Douglas Kell (University of Liverpool) on post-exertional malaise as a Chronic Ischaemia-Reperfusion injury in Long COVID and M.E./CFS resulting from fibrin amyloid micro clots.
  • Dr Kennie Baillie (University of Edinburgh) on the genetics of susceptibility to critical Covid-19.
  • Marte Viken (Oslo University Hospital) on an immunogenetic study of ME/CFS patients.
  • Feedback and discussion from workshops and key points to take forwards.